Hemophilia
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Managing a rare bleeding disorder at school

Hemophilia is a rare genetic bleeding disorder. It runs in families and is almost always seen in males. Hemophilia occurs when blood clotting factors don't work as they should. Blood clotting factors help stop bleeding after a cut or injury.

There are two main types of hemophilia: Hemophilia A is caused by a lack of active clotting factor VIII (8). About 1 out of every 5,000 male babies is born with hemophilia A. Hemophilia B (Christmas disease) is caused by a lack of active clotting factor IX (9). It is less common and affects 1 out of 30,000 male babies.

How severe can it be?

How severe the disease is depends on how much clotting factor is produced and when bleeding most often occurs. There are three levels of hemophilia:

  • Mild hemophilia: Clotting factor level is at least 5% of normal. This type might not be noticed unless there is a lot of bleeding after a major injury or surgery.
  • Moderate hemophilia: Clotting factor level is 1% to 5% of normal. Bleeding normally follows a fall, sprain, or strain.
  • Severe hemophilia: Clotting factor level is less than 1% of normal. Bleeding often happens one or more times a week for no reason.

Currently, there is no cure for hemophilia however treatment options are available. 

Important to note

It is very important for students with hemophilia that:

  • Medical Alert Planning forms have been completed by the parents and doctor and returned to the school (visit the Medical Conditions at School page for more information).
  • school personnel, as well as the student, have had education about hemophilia, know the signs of bleeding and treatment measures.
  • they wear their Medic Alert identification at all times.

More resources

 

MoH     PCQO